This is a great post for me. I have bilateral problems. A fall five months prior to severe onset may be the key. No doc has acknowledged the possibillity. It took a vrt to see these probems. I've been on disability for a year now and losing the majority of my abilities has been hell. I would love to be normal again, there's so much I miss. It's like you are living life out till it's your time. Fortunately my wife has been soooooo understanding and supportive.
Let's all talk more, I'm going to Mayo this month but I'm so apprehensive with my past experience.
Mike