A couple of other things - Are you taking ldopa overnight or not ?

Wonder if you are experiencing paradoxical off and on, where even on medication you can suddenly go off.........

I agree with Made it up on meds, you have to find your tightrope to be able to use it - and it does sound like off's to me, though I am puzzled by it happening right after taking meds......... that is why I asked about nights.

Wearing on can be as nasty as wearing off, I remember seeing something about MJF not liking the way meds kicked in. It is often v uncomfortable for me..... getting worse before better...... sinemet sensitivity is also a possibility...

It is a problem when we don't know and our doctors don't know either, but nevertheless there is this issue that we are living with....... hope you both find solutions soon.