Hi Jenn,
I am sooo sorry you have been through all the doctors in the last three years. This is such a misunderstood disease as my two previous RSDers previously mentioned (I got a kick out of the quack part lol). Jenn...you are a very sane person and not going crazy. At least we will not let that happen to you. You can vent here all you want and hopefully it will help you deal with this mess. Coworkers and most family members will not get it and never will so take care of YOU and the heck what everyone else says or thinks. Tell them they are blessed not to have what you do. I used to think natural childbirth was difficult and then came rsd which made the childbirth look like a walk in the park! I told that to a Pain Mgmt doc once and he looked at me like I was crazy!!
You said your doc wants to do nerve blocks immediately. That is what usually happens in the beginning. They will try nerve blocks, then all kinds of meds like Lyrica and Neurontin...the list goes on and on. Then the pain meds will start. I have had this monster for over six years now and have tried it all from ketamine to chiropractics (and back again). You will need to find what works for you. The main thing that you will need is to have hope in everything. Be positive and never give up. I have the "brain freeze" as I like to call it. As a matter of fact today I was sitting with a friend (I've known her for four years) and my home health aid walked up (I've known her for three weeks). I went to introduce them to each other and I drew a complete blank and could not even remember what their names started with. Talk about an awkward moment. I just calmed myself down and trying to think slowly until I got it. I have found that having a calendar next to you and some paper and pen to write will help keep you situated...esp with kids.
As Cindi mentioned above
www.rsdhope.org and
www.rsds.org are two really good sites to help you do your research on. Any more questions we are here to help you. Please feel free to vent.
Best of luck.
kathy d