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Senior Member
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Join Date: Aug 2006
Location: "all the way over on the West Coast"
Posts: 1,032
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Senior Member
Join Date: Aug 2006
Location: "all the way over on the West Coast"
Posts: 1,032
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Input requested - MJFF Patient Council Meeting
On November 10 and 11, I will be attending the MJFF Patient Council Meeting.
What questions or ideas of yours can I bring with me? Just by posting them here in this thread you can be sure they will be seen by Debi Brooks and other MJFF staff. Or you can PM suggestions to me, and I will be sure to forward them.
To give you some context, here are the general topics (draft) I have received for the meeting:
Status of PD science and MJFF's role
MJFF research vision and how to communicate that vision
How to engage patients in a digital world
Clinical trial services including PPMI, Fox Trial Finder, and recruitment strategies
Brainstorming for the future
Debi Brooks and Todd Sherer will be presenting along with several other MJFF staff. We also will meet with members of the Executive Scientific Advisory Board.
I will report back after the meeting. Thanks for your input!
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Carey
“Cautious, careful people, always casting about to preserve their reputation and social standing, never can bring about a reform. Those who are really in earnest must be willing to be anything or nothing in the world’s estimation, and publicly and privately, in season and out, avow their sympathy with despised and persecuted ideas and their advocates, and bear the consequences.” — Susan B. Anthony
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