Quote:
Originally Posted by gabbycakes
Dear Jennifer Q,
We can all relate to a story such as you just told. You brought back a memory for me. During the beginning of this nightmare I had my 2nd 5 day in-patient ketamine procedure and I was home about almost 2 weeks. At the time my son was 14 and very involved with ice hockey and played on 2 teams 1 being a travel team. We car pooled but this one evening his ride was not going to the rink an hour and 10 minutes by highway, my husband was working and couldn't get home in time so I decided to try and drive him. What a mistake, I didn't feel 100% percent yet a little paranoid so I decided to take the back roads. Well about 45 minutes into it, and I had my 10 yr. old daugher in the back, I looked at my son and said I can't do it, he never said anything but the look on his face was so upsetting to me I cried the whole way home. It was only 1 practice he survived but it's just the c...we have to go through to live a normal life, we truly do a have a "invisible disability". People just don't get it if you look normal you should be. My story is a little bit different then yours but the frustration of this disorder is so consuming at times.
Hope you get some sleep and feel better today. The change of weather is always a hard time for me also.
I give you credit I don't think I would of been so nice to that lady and your Mom was great.
Pain free days ahead.
gabbycakes
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Thank you Gabbycakes for your kind words. I sometimes think if my children and my husband really understand how miserable life is fo me. I tell them all the time that I'm not trying to neglect them or be apart of what they're doing, its just sometimes (ok majority of the times) I'm not 100% up to doing things. It makes me feel like a really horrible mother and wife when all I can do is lay in bed. It sucks even more when I have to ask them to help me with stuff or get stuff for me because I can't muster up enough strength to do it. Its so depressing! I'm young I shouldn't be feeling like this and heck I've been taking care of my mom who has Lupus. And she seems better off than me! Lol ok so maybe she's in remission but still....you get my point right! I'm new to all of this and I'm not really handling it well but I'm not sure how to handle it. I'm glad I have you all to vent to and to understand my situation. I know we all have differences in this battle but there is a common demoninator and for that I'm grateful. My family tries their best to be sympathetic and understanding, my mom more than others cuz she knows pain but still they don't get the full scope and I think I have to bemore understanding of that as well.
If I could hug you thru this computer I would! Thanks again!
Jenn