Daisy, the dystonia can leave you with tight, stiff muscles from being pulled and jerked. How often do you get the dystonia attacks and how long do they last?
Call your doctor and see what his opinion is, perhaps some medication or massage therapy can help. I don't think is sounds like the MS hug to me, which has been with me for about 12 years straight. It's the pits. Whoever named it the hug, had a terrible sense of humor.