Hello, Jacob. You certainly seem very young for all this. My dad was 35 when he was diagnosed. That was 65 yrs ago--before they could do a whole lot more than diagnose.
I'd hate a port in me, so I can certainly get where you're coming from there. Let's pray it's worth it. They know so much now & I hope that works in your favor. As young as you are, maybe they'll come up with some sort of genetic or stem cell approach that will make a significant difference.
Pie in the sky? I don't think so. Science is moving at ever faster speeds these days.
Here's the link to the MG forum:
http://neurotalk.psychcentral.com/forum77.html
Best to you, Jacob. Hop on over & introduce yourself there too. Take care.