Cooperative is the word that hit me from MD's post. That is what patients would like, that orgs would work cooperatively with them. It is fine working with what they are doing now, and has come a very long way, but it is time to understand the international dimension to PD, that there are no borders. As yet most orgs do not bring patients to the table, or only in a fairly nominal way. I would like to see some of the boundaries come down, and patients brought in from the cold. MJFF could do this, given the will to do so.