Quote:
Originally Posted by catra121
I am so sorry that you have to deal with this...it is not an easy thing. I can tell you that with the right mind set you can accomplish miracles. You sound like a fighter and that is a very good thing. The reality is that you need to "deal with the situation" but that doesn't mean that you ever stop fighting for something better. Learn to live your life and still enjoy life right now...but keep working towards your goal of getting better.
I've recently been working on changing my diet to help with swelling and stuff. I don't know whether it's working or not yet...but it certainly can't hurt, right? There are lots of things you can try besides meds and procedures to make your daily life better and help with the RSD. I find that heat helps so I've tried a variety of heating pads, space heaters, warm clothing, hot baths, etc to help with the pain and function. Physical therapy hurts but it helps so I keep pushing to do as much as possible. I have pain in my hands but I force myself to continue to do my stitching or work on puzzles...my physical therapist said those sorts of things would be good for me. I work really hard on my exercises every day throughout the day and that's a big help I think. It's a lot of trial and error, but worth the effort when you find something that helps at all.
Keep fighting for the things that you need to get better, keep moving, and don't give up.
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Thanks, Everyone tells me I am strong but I do not really feel that way. I have changed my diet to Gluten Free and I feel better as far as my digestion. The Occupational Therapy does help, but very frustrating as I have no feeling in my three fingers. Your idea of heat sounds good as I tried moist which the pad goes in the microwave and is just the right temperature. One problem I havr is that my fingers are swollen by my nails which is painful and I can not even cut may nails. Since I am taking meds I can't feel my thumb or index finger I am not able to drive but have tried with my boyfriend with my as I don't trust my ability or if I start to feel I can not drive at least I am not alone.
My situation is not my right hand which is a good thing but doing the simpliest thing like cooking or washing my hair or cooking I am unable to do. I don't know if Homeopathy is a right route but I am trying every avenue.
I hope that things get better for you and would like feedback as I care and have empathy for your situation as well.
I am glad you do puzzles as that is very theraputic.
We will both keep fighting and stay strong as this disease is so unpredictable.