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Junior Member
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Join Date: Oct 2011
Location: Massachusetts USA
Posts: 13
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Junior Member
Join Date: Oct 2011
Location: Massachusetts USA
Posts: 13
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so sorry, I know it's hard
I've had atypical trigeminal neuralgia in my eyes for 6 years now. I'm on gabapentin, cymbalta, lorazepam, and tramadol.
My mom just developed trigeminal neuralgia over the summer. Because of my experience I knew right away what it was. She got in to see a neurologist and was put on Trileptal (Oxcarbazepine). By the 2nd day she was feeling better and the lightning bolts had stopped.
Everyone is different so nothing will work for everyone. If you have the lightning bolts that are common then I would try the Trileptal. Neurologists are using it now as a diagnostic tool. If it works...then it's trigeminal neuralgia.
God bless!
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