Quote:
Originally Posted by Mark in Idaho
With your extreme history of injuries, symptoms and treatments (surgery, ECT etc), I think it is very difficult to expect any worthwhile diagnostic or other medical help here on NeuroTalk. Support with the day to day Activities of Daily Living (ADL's) struggles we all live with is probably all we can offer as help.
Do you live anywhere near a medical school? Getting into a class diagnostic project where you have multiple med students researching your symptoms may be a great opportunity.
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Thanks for being straight up. I do live about 15 minutes away from Johns Hopkins in Maryland. That is a very good idea though and i will look into it. I am currently seeing a doctor there who specializes in autonomic dysfunction and is world renowned. He is very good at figuring out difficult cases but he even says mine is very complex and is having a harder time. He also recommended me to the neurosurgeon who did my surgery and is also world renowned. I see him this month for a followup on my surgery. I don't know what to do...I can't live like this and something needs to change but i have gotten tons of tests and my thinking problem which is so severe is unaccounted for still...meaning they can't find the cause. But i have had some pretty weird anomalies through the years.
Thanks again and if it would be alright i would like to private chat with you on here just to make sure i have my bases in line.