I have the same condition with no answers. It is so depressing. Have you been tested for Herpes Simplex Virus? HSV1/HSV2? If not you should. I have a strong feeling that is what mine is due to even though I show negative on the tests. The tests for HSV1 and HSV2 miss up to 1 in 10 people if not more. Totally unacceptable if you ask me. Let me know.

Dan