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Junior Member
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Join Date: Oct 2011
Location: Massachusetts USA
Posts: 13
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Junior Member
Join Date: Oct 2011
Location: Massachusetts USA
Posts: 13
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hello
Hi,
I'm new too. I don't know what your diagnosis is. I have atypical neuralgia. I've had it for 6 years. In that time I've seen over 13 eye doctors for eye pain, pain specialists, neurologists, rheum. I've been on medications that have made me incredibly sick to my stomach. One's that have caused hallucinations and nightmares. I'm currently on cymbalta, gabapentin, tramadol, and lorazepam. Like you, I refused any meds in the beginning. I became so suicidal from the pain that I wasn't in any state of mind to fight them on meds anymore. I still have pain and I'm affected by the meds with memory. I have to leave myself notes everywhere. I know how frustrating it is. Not one doctor believed I wasn't just out of my mind for the first 3 months. I can't work either and I don't collect. It's been VERY hard on me and my family. My daughter was 3 when I got sick and now she's 9. It breaks me when I think of how much of her life I've missed out on. I try to stay positive, learn what I can, but it doesn't look like things will improve anymore than they have. Not alot of options out there for my diagnosis (as yet...hope...hope) Well, God bless you and everybodies gotta vent sometimes!!
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