Quote:
Originally Posted by lkindred
Peter did you have CSF if so I could use some info for my son. Thanks
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Sorry for the delayed response. Yes, I had CSF. To be specific I had Spontaneous CSF (Spontaneous means that leak occurs for no apparent medical reason. There is a great Wikipedia article on it.
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In my case, I was diagnosed after I my my family Dr. grew tired of my complaining of headaches over the course of one Fall. The "LuckyPeter" name comes because my GP sent me for a MRI where they imaged a brain bleed because I had lost so much cerebrospinal fluid... To be more specific I have spontaneous intercranial hypotension brought about by my CSF leaks.
Can you tell everyone a little more about your son?
Shameless Plug: When I finally got to Dr. Gray @ Duke I was in terrible shape. She found 26 or so leaks that first time. I've now had 12 procedures in the past almost three years.