Oh julie, sorry to hear of all your struggles. I am gonna share with you the same thing my therapist said to me. "you have to take better care of yourself and stop sabotaging your recovery". Now i initially took great offense to this. But when i thought about what she meant by it, and actually stopped and just rested and stopped pushing myself (mentally, physically, and socially), i started to see some improvement. She pointed out things i complained about or situations i put myself in where it caused me to have such a big setback and said to stop doing that.

Example....going out to dinner. All the small chit chatter going on, fan on the ceiling, car alarm going off outside the restaurant made for a very painful few hours. She asked why i didnt excuse myself and leave and i said i wanted to be normal for a few hours. Well, clearly it was causing me increased headaches, dizziness, and fatigue. So i have stopped doing social things with friends because i am just not well enough to do them. Yes i am becoming isolated, and it sucks, but i got this brain for the long haul and if my friends are true friends, they will be there for me during this and when im better. your friends will have a hard time understanding, but always a good idea to clue them in to your symptoms and encourage them to research the condition to understand better.

I am a workout junkie myself, and i understand where you are coming from with wanting to workout....but when you can directly associate your being wiped out with running....its a huge sign that your body is not ready for that just yet. Think about each pounding step as you run is giving your head a little jolt, it may be preventing your brain from healing. Try taking a week off and truly resting. See if you see improvement in your balance issues and headaches If you feel a little better, you will know thats what your body needs to heal. Good luck!!