Quote:
Originally Posted by JulieRN
Hi All...
This PCS has be baffled. The more I try to figure it out, the less I understand. I've always been the type of person who NEEDS to understand the why's and how's (that part of me is unchanged lol).
There is no rhyme or reason with this syndrome, to a degree. I definitely see triggers which is helpful so that I can avoid/identify them.
I can NOT stand the TV being loud, too many people talking to me at once, multitasking and most recently...the drive thru at fast food restaurants! I can't seem to make my mind up fast enough 
As of late, I have noticed my balance declining...rapidly. This is really scaring me. I've been going to the gym 3 times per week...2 miles on the treadmill, 2 miles on the elipitical. When I'm running on the treadmill, I feel very unsteady...like I'm running side to side. On the eliptical it's better, but I lost my balance and fell off of it last week. GEESH! I'm 45 years old, 5'2" 115lbs. I feel great when I'm exercising, but then I am WIPED OUT for the next day. I refuse to give it up because I'm stubborn and feel it's the only thing I kinda have control over these days.
I'm getting so sick of snapping at everyone as well...my boyfriend, my kids...I get upset over the tiniest little things. I've tried to remove myself from the situation, but it's not always possible...especially with my nine year old son who likes to push my buttons Nothing worse than having your son stare at you wide eyed with tears in his eyes..that's when I know it's "me"....
For those of you who are unaware, I sustained my injury in 7-10 at work..the left side of my skull was impaled by the corner of an overhead metal filing cabinet. I became symptomatic within the hour...it's been a battle since. I have not received ANY care for my PCS and am waiting anxiously for approval to see a Neuropsychologist.
I've begun to pull away from my very best friends because I feel like I'm a burden, not really fun to be around and so sick of my symptoms getting in the way of my life
The dizziness, headaches, fatigue, tingling across the top of my head...they're back...with a vengeance. All I want to do is sleep. My memory is getting worse. Now I'm dealing with cold intolerance, twitching and I swear I am having focal seizures. My symptoms can last for days or weeks and then go away...they come back one or all and last for however long...the severity differs...yesterday, they all came back and I feel just like I did after my injury...
I'm trying to help myself as much as I can...is there anything else I can do?
I feel lost and frustrated...but I'm not even close to giving up. That will never, ever be an option for me. I want so badly for this to just GO away. |
Julie RN,
I can so relate to you in many ways. I have been pushing myself since the day my symptoms started. I didn't go to the ER right away. I tried to shake off the injury because I think I knew I was in trouble and also in shock...lol
I did go to a walk in clinic later that day. I drove myself but dont remember much about the ride over. I walked in and they took me asap.... I know that is never a good sign.
My husband has to yell at me to relax because I push it. I take a good day (which is rare) and I will try to make up for all the stuff I haven't done. I also tried my walking and the gym again. It gets me no where. I clean my kitchen floor and then sleep for two days or deal with the pounding headache or the shooting headache whichever decides to show up..lol.. The whooshing sounds in my head are pretty loud sometimes. So loud I lose my balance. So I am stepping back....again. I will rest and try again but little at a time.
You also need an Attorney. I would be in big trouble without one. They contested my treatment and I had to have a hearing. Your Neuro should be pulling you from work and you should be resting. I know it's hard I understand that...but in the end we're slowing down progress.
Good luck!!!
Crystal