Senior Member
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Join Date: Apr 2009
Location: Stafford, UK
Posts: 1,059
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Senior Member
Join Date: Apr 2009
Location: Stafford, UK
Posts: 1,059
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Like rd42 I've been unable to find detailed instructions. Without those, there is a danger that different people mark differently (my "mild" might be your "moderate").
Moreover, the 5 point scale (0, 1, 2, 3, 4) is restrictive. Can you have a 2.4 for tremor, say?
Does this matter? It depends on the context. As a measure of long term progression, especially where the marking is done by the same person throughout, it's probably reasonable. But, it doesn't help much for the sort of questions that I think many of us have: what exercise/diet minimises my tremor?
Tremor is difficult to measure because it affects different parts of the body differently at different times. That said, I still think we should try to objectively quantify it: e.g. the movement of my left index finger is 1 cm/sec, with a frequency of 6 hz.
Devices exist to do that, some with data logging over an extended period.
As a first step, I'm writing a program which uses a lap top's touchpad to measure finger motion over a 30 second period, say. It will only give a snapshot view.
John
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Born 1955. Diagnosed PD 2005.
Meds 2010-Nov 2016: Stalevo(75 mg) x 4, ropinirole xl 16 mg, rasagiline 1 mg
Current meds: Stalevo(75 mg) x 5, ropinirole xl 8 mg, rasagiline 1 mg
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