William Osler said- The more the ignorance the more the arrogance. And I have found that it also goes the other way around. Those who are sooo confident don't think they need to learn any more, as they already know it all. And obviously there is nothing they can learn from patients, who clearly don't have their insight and experience.

Many years ago, when I was a young hematologist I had a patient with leukemia that none of my highly experienced colleagues (who have seen numerous patients) has ever seen. It was so unusual that we weren't even sure it's leukemia and not some other tumor, but it didn't fit anything else and had many features of leukemia.
The head of my department said he has never seen anything like that. For that reason, we decided that we have to take into account the unusual features of his illness in our management decisions and treatment approach. This patient is now live and well.

When numerous neurologists that took care of me over those years told me that they have never seen a patient like me, the head of my department reminded me of this patient, and encouraged me to keep on searching for someone who is capable of a reasonable clinical thought process.

It took me quite a few years to find a neurologist, who thinks in this way. When I told him that I have a very unusual variant of myasthenia, he said that myasthenia is always a very unusual illness. When I asked him if he has ever seen a patient like me, he said that he has seen many patients with myasthenic crisis. When I said that mine is different because I can go from being nearly normal to requiring respiratory support within a short time and then recover within a few hours, he said-those fluctuations are typical of myasthenia, yours are just a bit more extreme. When I told him that I have a completely normal SFEMG, he said-well, it's only a test. I have seen patients with unquestionable myasthenia who have normal EMGs. when I told him about my unusual response to many medications, he told me about other patients he has seen with unexpected responses.

I do not know if you have myasthenia or not. All I can say is stay away from those who know for sure, about an illness in which there is so much unexplained and unknown. Find those who respect you and your concerns and are ready to help you, even if they have not seen someone exactly like you before.
My neurologist told me that he has worked for many years in a large MG center, only after months of taking care of me, when he thought that knowing this may give me more confidence. He said it very humbly, telling me that he was not the one that ran the MG clinic, and does not see himself as an MG expert, but did take care of hundreds of MG patients.

I am sure that he takes similar care of all his patients, humbly trying to understand them and their illness and find the best way to help them lead the most normal life possible, regardless of the name of their illness.