It took me 12 hours to make a 3 hour drive a few years into having RSD, but before I had accepted the limitations it brought. It was for my bf's wedding shower. I'd drive 1/2 an hour. Stop. Take meds. Wait to be not too medicated. Rinse & Repeat.
My bf didn't believe that I had really taken that long or required such extreme methods.
So when our nearest and dearest struggle with our illnesses, what can we really expect from strangers?
People will surprise you with their compassion, and others will surprise you with their nastiness. Many will seemingly take your illness personally--which I don't understand at all. It's as if they think you've done something to bring it upon yourself. They don't want to believe it could happen to
themselves I suppose. Everybody will have a cure after doing a 2 minute Internet search. And yeah, maybe trying some of those things are worthwhile, but there can be an expectation that it's easy to go into remission. If you fail to get better in their expected time frame...
My vent for the month...