Please don't give up. My neurologist was pretty sure I didn't have MG, and content to just check my progress in six months. I came back and said, "Look, I'm getting worse, and nothing is helping--we need to do something." He sent me to another neurologist, who diagnosed me.

I believe that it's persistence that will finally get you a diagnosis. See the sleep doctor, if it's not a crazy amount of trouble. Even if you don't have a sleep disorder, that will at least cross one more thing off the list of possibilities--and maybe you'll get a valuable referral there.

I'm so sorry you're going through this. As bad as this disease is, I was much more distressed by not knowing what was wrong with me.

Abby