If after a year and a half of no improvement on IVIG there should be escalation of therapy to another modality, ie. Rituximab, Cytoxan.
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Originally Posted by poppyjohn
I was diagnosed over 4 yrs ago. The doctor said wait and see what happens. 2 years later I got a 2nd opionion alot more testing and MMN was again confirmed. Now a year and a half after IVIG not much relief. I am exhausted all the time. So tired some days I can hardly function. Since I run 12 heavy machines at work my neurologist wants me to go out on permanent disabiity. I'm nervous about going out. I am 56 years old and worried I wont be approved,then I have lost my job and insurance. Has anyone with MMN gone out on total disability.SSI?Does anyone have any suggestions? Doctor is afraid since I have loss strength my job could be dangerous. Hope to hear from anyone out there that might be going thru the same delemia.!!
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