Hey Serena,

My MG started with "silent" migraines so no one understood what was happening to me. I had all the symptoms of migraine but no pain. The migraines went undiagnosed as did my MG for a few years.

My daughter has MG now too. She also started with migraines at the same time. They say that MG with migraine is rare but I have met a few people online who have both so I suppose this goes back to docs not knowing everything and certainly not knowing every other doc and all their patients too.

We are both seronegative and have atypical MG presentation. You have to find a neuro who has enough ego strength to deal with the fact that you may not fit neatly inside the box in presentation. At least one who will do all the testing on you for starters! An antibody test is not enough to say that you are done with testing unless there is another explanation that totally fits for you. Hang in there....debra