Originally Posted by Vivi_Fruit

I feel so much less alone now.

My posture is your standard hunched-over-the-computer-in-my-cave, which I suspect doesn't help. No idea about Ehlers-Danlos syndrome, but I do have hyper-lax joints...always something cracking or popping. I feel like my arm kind of goes out of its socket at times.

I've got appointments with both the vascular and ortho docs coming up in the next few weeks. How do I go about getting properly dxed, or at least have my concerns taken seriously?

My GP originally suggested that my cold hands were just "nerves"--something I was more than happy to believe until the other symptoms started. I feel stupid for doubting myself. Hoping it's not too late to somehow get this resolved...