Originally Posted by Susanne C.

I have CMT, and was very clumsy as a child, with a very high instep. About 12 years ago I started having numbness in my toes, which has now progressed to a complete loss of sensation to just above the knees. Skin punch biopsy showed severe length dependent small fiber neuropathy, NCS shows large fiber neuropathy with muscle loss. All is slowly progressive. This is by way of background.
As to your question, I experience the weakness, lack of balance, and stabbing pains in the ankles that you describe. I do not have complete foot drop as yet, but I am dragging and catching my feet more often. The ankle pain is weird, it feels like it should be something serious but it comes and goes without treatment. I just assume it is part of the neuropathy. I am 49.