Unless SS approves me this round for disability, I will be without insurance at all come May. I'm using COBRA right now, but unless I am on SSDI, I can't get the 11 month extension that will cover me until I qualify for Medicare at 24 months.

Anyway---I've been checking on help with my IVIG (because I certainly can't afford to pay for it myself!) and I found that many of the companies that produce the medication itself have programs to help pay for it. I am on Gamunex and I know they paid $3,200 of the $4,000 out of pocket for another patient. My IVIG nurse also gave me a list of organizations that help pay for treatment for people who have rare or expensive diseases. They are as follows: Chronic Disease Fund 877-968-7233; Health Well 800-675-8416; Nat'l Organization for Rare Disorders 866-924-0100; Patient Advocate Foundation 866-512-3861; Patient Services, Inc 800-366-7741 amd Patient Access 800-316-7263. I haven't called any of these yet, but the IVIG nurse says that have helped other patients.

Good Luck!