Can anyone please help.

I got diagnosed nearly 3 years ago with GON, i have had no trauma to the head since i was 14 and am now 29 (got hit by a vehicle) my specialist told me i have had this all these years but for some reason pain only started to come out around 4 years ago.
I first started to realise something was wrong when i had a lump come up on the lower part of my neck towards my left ear, it came up the size of a golf ball then would go after and few hours and was very painfull.
I informed my gp but as he never saw it and my neck was not painfull unless the lump was there, there was nothing he could do, i continued to complain about this and even told my ent specialist, eventually they sent me for head scans and all came back clear.
I was reffered to a pain specialist and was diagnosed GON. since my diagnosis i have been on every medication possible, i have GON blocks twice a year (the most the government will allow so i have been told) even though my specialist has said that due to my pains i need at least 3-4 a year to cope, my daily medication is AM carbamazapine 200mg, co-codamol 500's x2(every 4 hours) meptazinol 200mg,ibuprofen 400mg. AFT co codamol again, meptazinol 200mg ibuprofen. PM carbamazapine 400mg co-codamol again, meptazinol 200mg ibuprofen. As well as this i have diazipan 30mg in 10mg doses if and when needed.
This is all just in my daily routine yet nothing can get rid of the pain. i have had 5 GON blocks now the first one did make my pain worse as i was told there was a good chance it would but from injection 2 it has been great and after the injections i have been pain free for a while but then all of a sudden it's back and worse.
all of my pains are on the left side of my head face and neck, the lump still comes up a lot but seem to be fobbed off with swelling.
I have a full time job a a carer in a psychiatric hospital and i can't cope. i have so much time off work due to my pains i don't know what to do.
i am getting to the point where i just can't cope and most certainly can't look after my self when the pains get really bad.
please has any one got any sugestions that may help
thanks sufferer