Originally Posted by mommyjen

The statistic on reversing RSD if caught early has been told to me by the specialists at UNC Hospital Pain clinic, Mass General, and UMASS Boston. You can also find it in the RSD Puzzle link that many of you refer to.

As far as the crippling effects go. Pain causes disuse which causes muscle wasting, bone loss.... that is what we know clinically. I realize that people can have multiple issues. Dystonia is a seperate diagnosis.Most people who have RSD are not dystonic. I am sure that on top of RSD it is quite crippling. There is no solid evedence that RSD in and of itself is crippling. It is the pain that causes disuse. That doesn't mean I think people choose to become crippled or don't work hard enough. I have permanent bone issues and function loss. I realize that not enough is known and there may be new information coming down the pike, I hope there is. I just feel like with a newly diagnosed person it best to stick with what we know and then let thier journey unfold. Each of us have seperate complications but I am a believer in building from the universal truths of RSD. There a symptoms that every one of us has in common and then there are the " do you feel this?" " Does this happen to you?" symptoms that can vary or could be a completely seperate condition that gets lumped in. I think a lot of Doctors start attributing everything to RSD once a person is diagnosed. It happened to me with an autoimmine disease. Fevers, rashes, chronic swelling ad tendonitis....... I was told it was my flukey sympathetic nervous system, the swelling was the RSD............ years later someone looked in a different direction and found an autoimmune disease .Now I am on treatment for Lupus and those are under controll. I am back to the same RSD symptoms I had since I was 3.

Agree........ disagree........... all information is good and keeps a balance