Sorry about what you are going through.
So were you diagnosed with Pagett Schroetter disease, aka effort thrombosis? If there was damage to your vein, do you know was it damage from "blasting" out the clot or damage from compression from your rib?
Did your Dr order you to have a venogram done yet? What type of Dr are you seeing for this? (ex. hematologist, vascular surgeon, general practitioner?)
Quote:
Originally Posted by mommamomma
I was diagnosed with TOS four months ago. A blood clot formed in my right vein which is how the whole diagnosis was found. I am now seven months since the blood clot was found. I had a surgery in April to try and "blast" out the clot. Now that the clot is gone there is significant damage to my vein. My doctor had me in PT to work on opening the space between my collar bone and first rib but this has not happened. My doctor is now giving me the option of first rib removal and vein patch or come off my blood thining meds and see if another blood clot forms. I haven't seen much on your site about this or the internet for that matter. Does anyone have any advice or guidence as to where I could look for information? I read several posts on here about post surgery and am not too optimistic about spending so much time down and out. Thanks.
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