I was diagnosed with Pagett Schrotter. The damage to my vein is due to the clot. Had to have the vein ballooned up to even get the tiny cathater to fit through. My doctor, a vascular surgeon, said that the clot was very old and that my veins walls are very damaged and thickened because of the clot being there so long. I have had a venogram and am not allowed to move my arm straight out to the side or anywhere above my shoulder because I have no blood flow to my arm at that point.
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Originally Posted by Mcmanisport
Sorry about what you are going through.
So were you diagnosed with Pagett Schroetter disease, aka effort thrombosis? If there was damage to your vein, do you know was it damage from "blasting" out the clot or damage from compression from your rib?
Did your Dr order you to have a venogram done yet? What type of Dr are you seeing for this? (ex. hematologist, vascular surgeon, general practitioner?)
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