In just a few days, Paula has transformed care of PWP in this rehab facility, by talking to the staff and explaining PD meds and special needs of PWP. It is clearly a national problem. Until one of the national orgs steps up to take on this issue, maybe each of us could help to light a flame in our own communities. If you belong to a support group, bring up the issue and ask if there is any education or training going on in your local hospitals and other health care facilities. If your group is affiliated with APDA or NPF, ask the leadership to contact them and tell them about your communities’ needs.

I have been hearing hospital horror stories like Paula’s since I was diagnosed 15 years ago. It’s time to say “NO MORE”