Quote:
Originally Posted by LindaH
In just a few days, Paula has transformed care of PWP in this rehab facility, by talking to the staff and explaining PD meds and special needs of PWP. It is clearly a national problem. Until one of the national orgs steps up to take on this issue, maybe each of us could help to light a flame in our own communities. If you belong to a support group, bring up the issue and ask if there is any education or training going on in your local hospitals and other health care facilities. If your group is affiliated with APDA or NPF, ask the leadership to contact them and tell them about your communities’ needs.
I have been hearing hospital horror stories like Paula’s since I was diagnosed 15 years ago. It’s time to say “NO MORE”
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An action brigade of individuals!
In 2008 I ended up at the George Washington University Hospital emergency room with an infected cat bite on my hand (went directly from the plane when it landed in DC on my way to the PAN Forum). I was in the hospital for three days (missed most of the forum) - but the point is - I told the nurse that I needed my PD meds on MY schedule, not theirs. To my great surprise she replied, "I know - we just had an in-house training about that!" And I never had a problem. Turns out somebody on the PAN board had arranged it - good luck timing for me! (I was prepared to educate if I had to - I wasn't about to hand over my stash without a fight; and I kept the pain killers to tylenol in order to remain clear - I was 3000 miles away from family, and couldn't believe I was in such a mess so far from home!)
One facility at a time, either by individual or organization, we can improve the system!
I'm glad you're feeling better, Paula!