It started about 8 years ago with loss of sensation in my feet. Thought they'd gone asleep but it was reason enough to consult with my MD. I've always had high arches but I thought it was because my mother put me in correction shoes. Couldn't run worth a hoot so I didn't make the Track team.
After neuropathy tests were conducted, I was diagnosed with CMT. Doctor told me it wasn't a killer just a crippler. Can't tell you how many times I fell and stumbled. I wear a ATF on my right ankle due to foot drop. I was watching a DVD tonight and was sliding my hand down my left calf muscle and about 85% of the lower part of my calf has wasted almost to the bone.
I try and go to the gym and ride a bike about 10 miles a couple times a week. Plus I walk in my work. Doctor says exercise may slow the progress of the disease.
My question is: "will I still be able to walk when the entire calf muscle is gone?".
I know the following sounds crazy but if the lower leg can't support my body anymore but the thigh muscles remain strong then removing the lower legs and fitting a prothesis(2) could bring back quality of life? Or is that a little far fetched?