Welcome to the Forum. Many wonderful people are here to support you and help you through the good and bad times.
I was a little surprised that you have not found help in the UK. My pain Dr. from the U.S. goes to the largest CRPS conference held every year in England. I think that the university would be able to point you in the right direction. I read that Holland, Scotland, and England have the highest rate of CRPS in the world, and they have developed many of the treatments, we are slow to receive in the U.S. such as Ketamine,outstanding physical and occupational therapy techniques, and other treatments. I also read that the original protocols were developed in the UK. I hope you can find some of these organizations soon so that you can receive the proper treatment for your particular condition. Not all treatments work the same for everyone. It is better to receive treatment asap so that you can have a better chance for remission.
Thank you, and know you are never alone.