I agree, you need to be mentally very strong.

pain, loss of strength, less money, less activities, no more work, considered Benin, a desire to tear our own scalenes sometimes

I mean it's not like cancer, the desease of all the desease, above there is nothing.

If you got cancer you are a warrior, if you got TOS you are a lazybones. ( You can be cured of cancer 1 time out of 2, and for tos ? i bet 0,10 out of 2 )

Finally it's like we can't understand with our little neck muscles problems.
Poor boytos he have tense muscles -_- do some shoulders girdle, keep a good posture and it's ok !!... NO !

my radiologist and my gp said TOS is not a "desease" lol. Yeah it is a syndrome, so what ? Steven-jonhson syndrome is a syndrome too

But i have read a study that say TOS is as problematic as a cardiac condition.

i personaly have some ideas for treating TOS with drugs, you can see my threads.