I was approved for SSDI more than a year ago. I have read on this site somewhere that people can call and see why they were approved. I finally got around to doing that. My main problem is Reflex Sympathetic Dystrophy (otherwise known as Complex Regional Pain Syndrome) but also have Peripheral Neuropathy, Fibromyalgia, was diagnosed as having depression etc etc etc. Quite a few things.

I know you are supposed to keep seeing your doctors. I see a family doc as well as 7 specialists. Money is tight now more than ever, and I could stop seeing 2 or 3 of the doctors. No one can do anything to help me anymore anyway. So I thought I would see "why" I was approved, then I could cut back on docs that were not involved in that particular problem.

When I called, they looked it up and said I was approved for Multiple Sclerosis. I have been tested for that recently (after approval) and do not have it. I don't think I was ever tested for it in the past. I got copies and read them of all my doctor records for the past 10 years. No mention of MS.

Hmmmmm

The woman at the office said that they "probably" put what I have under MS because they do not have every disease in their listings and sometimes put you under the next closest thing. She said "isn't what you have sort of muscular?" I said no, it's in the nervous system.

Hmmm.

What I wonder about is when it comes time for the Continuing Disability Review - if they do not see MS among the things I am being treated for --- then what?

I'd like to get more info from SSDI, but frankly, I am afraid to follow up and bring attention to this.

It seems wrong to have been approved for something I don't have.

Has this happened to anyone else? Any comments on this?

Thanks!