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Member
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Join Date: Oct 2006
Posts: 371
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Member
Join Date: Oct 2006
Posts: 371
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Hi,
Yes it is true that it's hard to get diagnosed. Doctors are afraid to give the diagnoses unless it's black and white to them, and other doctors.
From what I understood, most doctors don't want to give such harsh drugs to patients, if there is a possibility it's not mg. Once a person goes down that road, it's so hard to turn it all around. And then there's the law suits.
I also learned that the antibodies, can show up on one blood test, and then down the road, not show up, causing further confusing. Just about every test out there for mg can be negative, and you still have mg. So it can get very frustrating for both doctor and patent. Please hang in there, they'l figure it out.
But first you must find a specailist who knows what they're talking about. You may want to see a Neuro muscular specailist. Maybe call your local MDA office and ask, or go to the Myasthenia Gravis association,and ask them how to find a good doctor.
Don't forget to watch the mg conference on line next month. You'll learn so much, I know I did last year.
Oh, and by the way...welcome
love lizzie
p.s please read what littlewish and i wrote about prednisone too, and read as much about "all" the drugs that treat mg. educate yourself as much as possible, it's so important
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