Some of my best Board buds don't have PPMS. MS is so weird. Some PPMSers (some) are way different from me like RRMSers (some) are.

Wheelchair Kamikaze(Marcstck) is a PPMSer who writes a blog (love it - funny, informative on so many MS issues. Another PPMSer writes a blog and I often don't relate to it). But they are not 100% sure Marc has PPMS, they say Maybe it's something else, not that we know what. So I often use symtoms as what works for me. Koala and Salpal don't have PPMS, don't tell them I said this, but both are really OK (I hate saying nice things!). AARCYN is PPMS and we have an e-mail relationship but are more similar as Moms than PPMSers. My point is no matter what your MS title, everyone is so different from each other. I think with other's help, I started this thread hoping some PPMSers would present some answers. The answer was there are no answers. One of my favorite board buds was a Tourette's person who liked the MS posters (we are a fun group)(wasn't Who Moi great?). And Neuronixed Craig , He's not an MSer but is one of our own anyway. For so much stuff, his is a voice of knowledge to listen to. I can't walk but have minimal pain and seem ok cognitively. Others can walk but have burning and numbness (which I've never had).