Member
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Join Date: Jun 2009
Location: Texas
Posts: 748
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Member
Join Date: Jun 2009
Location: Texas
Posts: 748
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Welcome Don...glad you have found this site.
It is agonizing waiting for test results. And as I am sure you know, just because the antibody tests are negative doesn't mean you don't have MG. I am neg for AchR and was borderline on the SEMG - - but I have a noticeable response to Mestinon.
If your test results are neg....you might want to ask your doctor about the pros/cons of a tensilon test....or even a trail dose of Mestinon. From what my neuro says - only MG'ers have an improved response to Mestinon.
AS far as symptoms you describe...I can only compare to my own. I have had no weight loss or muscle atrophy. I do have the weakness and tiredness you describe -- though it varies in degree from day to day even with medication. I have no tremors or dizziness. I do have mild ptosis.
MG is different for everyone...and it seems very challenging for many neuros to dx. Hang in there! I hope you get some answers soon.
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