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Old 11-02-2011, 03:43 PM
bent98 bent98 is offline
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Join Date: Oct 2011
Posts: 170
10 yr Member
bent98 bent98 is offline
Member
 
Join Date: Oct 2011
Posts: 170
10 yr Member
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Quote:
Originally Posted by mrsD View Post
We've had discussions, but no one has tried it here yet that I know of. Some questions tho.

You can search Qutenza, and capsaicin and find posts.

Most of us cannot stand capsaicin but I believe I've seen a post here and there about it for the tough ones who can survive the burning.

This patch does not burn out nerve endings. It blocks substance P which nerves use in pain signal transmission. It is also very very expensive. It does not cure, and when it stops blocking substance P, the problem may still be there and the pain may return.

Let us know how it goes, if you try it. I personally don't like capsaicin products. I imagine there will be heavy push by drug salespeople to doctors. Some insurances will not approve and pay for a new expensive drug when FDA only approved for shingles pain.
There are some insurances still today that will not pay for Lidoderm patches without a prior diagnosis of shingles. So make sure you investigate the payment plan.

If your doctor thinks you have postherpetic neuralgia, I'd ask to try Valtrex first, as it may help even when there are no blisters/lesions.

This fairly recent article is not favorable to this new patch either:
http://www.sciencedaily.com/releases...0902121057.htm
They dont think I have postherpetic neuralgia sine I didnt have shingles. No one knows what I have. It all really makes no sense.
What everyone agree's on is that its nerve related.
Is the cause a pinched nerve or some type of idopathic nerve skin hypersensitiy who knows. I am desperate. I am getting a EPI in my c5-6 tommorrow to see if it helps. IF not, I have no choice but to up the gabapentin. I am currently take 1200mg.
I am at a loose.

I will continue with vitamins and ALA but not sure what else to do as my symptoms dont seem to match people with others.
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