Hello again,

I have an appointment next week with a new neuromuscular specialist. This is probably going to be my last shot at trying to get my weakness of 12 years diagnosed/treated, so I'm doing my best to get a thorough evaluation. Has anyone by chance been to see Dr. Kumaraswamy Sivakumar?

MG is just one of the diagnoses I think is possible. (periodic paralysis-maybe with paramyotonia congenita, episodic ataxia, mito disease, dysautonomia, etc.) So far, I have had NO abnormal test results of any kind. Before accepting yet another "gee, I don't know," to rule out MG I plan to ask about MUSK ab testing, Tensilon test and/or Mestinon trial, and possibly an EMG of the eyelids.

Anything else I should be asking about? Any tips you can offer?

Thanks,
Geode