Geode, Do you remember when you said you were "paralyzed" from a glucose tolerance test? Maybe you should load up on carbs before an EMG.

Are you going to give the doctor any documentation? Photos?

They might consider a muscle biopsy.

Have you seen an endocrinologist to do a 24-hour potassium (urine)? Has someone checked your electrolytes or entire chemistry when you are weaker, like after eating?

Don't give up simply because modern medicine is compartmentalized. Sometimes you need a few doctors coming at this from different angles to get an answer. Heck, there may be more than one "answer."

I've been sick and busy, so sorry that I didn't respond sooner. I really do hope they can figure out what's going on. I think you have to let the doctor take the lead. I'm not sure I'd ask for drugs like Mestinon until you have a diagnosis. Mestinon could actually make things worse if you have too much acetylcholine for some reason.

Do you have ALL of your test results? Are you sure you don't have any abnormal ones? Good luck!

Annie