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Old 11-04-2011, 10:38 AM
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catra121 catra121 is offline
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Join Date: Jan 2010
Location: Illinois
Posts: 1,785
15 yr Member
catra121 catra121 is offline
Senior Member
catra121's Avatar
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
15 yr Member
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I am so sorry Jimbo...sounds like not a good day at all. I know what you mean about wanting to leave the house and DO something to take your mind off the pain.

Dizziness, nausea, vertigo, blurry vision, ringing in my ears, and balance problems are things that have been bothering me ever since my RSD got worse. I was also getting hallucinations and running low grade fevers on and off. I went off of all my meds because my doc thought it might be seratonin syndrome and sure enough...the hallucinations and fevers stopped...but the others didn't. Sigh...we tried some headache medicines and antivert for the dizziness. Mild relief of the dizziness in the sense that instead of it getting REALLY bad 10 plus times a day it's only REALLY bad about 3 times a day. So far no luck with the headaches/blurry vision so we're trying amitriptyline and just upped the dose on that. I haven't had any blurry vision spells that lasted HOURS like I was getting before but I still get them a number of times throughout the day.

But I found an RSD puzzle about the visual and hearing problems of RSD so that's the next treatment that we are going to try. I haven't had problems with my blood pressure (though admittedly I never take it when I have one of my "spells") so it wouldn't have occurred to any of us to try a blood pressure med. But we're going to give the clonopine patches a try if this new dose of the amitriptyline doesn't help more. It's one of the reasons I love my new doc...she's always willing to try new things and to do research on RSD to help me with my large variety of problems.

My second pain doc had me taking 3000mg of tylenol a day for MONTHS and in retrospect I am not very happy about that. He said it would make the tramadol more effective...but I never got much relief even with the tylenol. Wonder what that did for the life of my liver. It scares me because it makes me wonder if these docs are even remotely concerned about the long term side effects of what they are telling their patients.

But anyway...I really hope that my doc (and everyone else's too) can find something to help with the dizziness, vertigo, blurry vision, etc because that's the reason I can't drive and why I am very nervous to do too much when I am alone in the house. When those "spells" come on me I am a total mess and usually fall down if I am standing (even when I have the walker with me).
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