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Old 11-06-2011, 10:33 AM
Geode Geode is offline
Junior Member
 
Join Date: Feb 2011
Posts: 91
10 yr Member
Geode Geode is offline
Junior Member
 
Join Date: Feb 2011
Posts: 91
10 yr Member
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Thanks, Annie. I'm sorry you've been ill, but please never worry about the timing of a response. You were actually quite timely and even if you weren't, that's just the nature of things when communicating on forums for chronic illness.

These are all great ideas you suggest. Will be sure to do video documentation and provoking symptoms for the EMG. I've had CBC and electrolytes done during attacks. I even bought a Cardy potassium meter to check my own potassium levels at home, and can't document shifts in potassium in relationship to my attacks. You are the second person to recommend the 24-hour urine K+ test, so I'll definitely ask about that.

The triggers of my weakness, and the wide fluctuations from normal strength to limp, just scream "periodic paralysis" but the following would all be atypical for that, and more suggestive of MG:

1. Age of onset - 30 years
2. Weakness of cranial muscles
3. No full-body paralysis
4. No documented shifts in K+
5. Ice helps my eyelids
6. Stimulants help weakness
7. Period of "remission" after a prednisone burst
8. Fatiguable weakness, rather than weakness during rest period AFTER exercise

If I do get an answer I'll be sure to let you know.

Thanks again,
Tatia
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