Quote:
Originally Posted by emily24
Hi everyone!! i've just dicovered this forum its fantastic!!!
I'm really looking for other ppls experiences with having a SCS.
Here's my story: I'm 24 years old and have had chronic pain in my right flank just below my ribs for roughly 3 years now. The pain is caused by my kidney which is scarred and has a reduced function due to renal reflux from when i was a child. I only found out i had a problem with my kidney 3 years ago when i was hospitalised with recurrent kidney infections and they did a scan which showed my right kidney to be half the size of a normal kidney (sorry its a long story) Anyway after numerous tests and poking and prodding my renal specialist said that he could do no more and he wasn't happy with removeing it due to the fact that it still has some fucntion. I was referred to a pain specialist who proceeded, over almost a year, to do nerve block after nerve block (8 in total) none of which gave me any relief. I've been referred onto a new pain specialist now who is sending me for a SCS. That is pretty much all he was able to tell me! 'yes emily i'm sending you for this, no its nothing to worry about' (his exact words!! the consult lasted a whole of 5 minutes during which time he poked me in the back with apaper clip saying 'yes you have an area of hypersensitivity there alright!!')
My SCS trial is due to go ahead on Nov the 18th. I have another consult with my specialist on Sept 28th which i made myself as i feel so unprepared for this and wish to have a proper talk about it with him but i want to be prepared which is why i'm looking for your opinions and expereinces on the SCS.
ps sorry about rambling on and on!
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Hi Emily, My name is Melonie, welcome to the site i am quite new to the site too, i like you suffer from Kidney problems also bladder, lower back and abdominal and pelvic pain, i had my trial 29th June this year and am still waiting for the permenant SCS to be fitted, my trial went really well with approx 60% coverage mainly in my trunk area, to obtain coverage in my lower back the stimulator had to be turned up on a high setting which then resulted in alot of tingling in my legs(i do not have pain in my legs) My surgeon and rep are sure with the permenant one they will be able to get better coverage in my lower back with more settings. Ive had my pre-op which took place on the 2nd Nov so im now waiting for a date for surgery! I hope the trial works for you and i would love to hear how it goes for you, Good Luck and if you want to ask me anything which you think might help you feel free to ask away
