Originally Posted by SmilinEyesMs305

Have you tried vestibular (balance) therapy? It sounds like a lot of your issues revolve around head movement, etc. I had the same problems at the beginning. Vestibular therapy has taught my brain to tolerate head movements, how to keep my body in the right places to keep my balance, and has gotten rid of a good chuck of the general dizziness I had when this whole mess started.

Hoping you can find some relief.