Quote:
Originally Posted by kittycapucine1974
Hi, everybody:
I am a disabled single mother with an adopted two-year-old baby boy. I have a police officer boyfriend, but he is still in the U.S. and he is trying to come to French Polynesia so the three of us can live together, love and support each other, and just be happy together.
My main disabilities are generalized internal chronic RSD, hypothyroiditis, epilepsy, and asthma. To me, there are five hardest parts to being disabled and to being a parent:
1) It breaks my heart sooo much to see my two-year-old baby boy suffering physically and emotionally from such a horrible disability as Cystic Fibrosis. He almost died so many times I lost count. Fortunately, I was able to get him a transplant of one heart, two lungs, and two kidneys. I was told by the surgeons who operated on him that it was very rare for someone his age to get the transplants on time, that is, before his disability takes him to a better world.
2) I cannot always do all the activities I would want to do with my little treasure, whether it is because of his transplants or because of my own disabilities.
3) I do not always know how to reassure my baby when he sees me suffering physically and emotionally so much because of my disabilities, especially my generalized internal chronic RSD and hypothyroiditis. Epilepsy and asthma are not so hard on me.
4) I and my son feel rejected by some non-disabled parents and their kids, as if I and my son were going to contaminate them, even though none of our disabilities are contagious.
5) I have to live, 24 hours a day and 365 days a year, in fear that CPS will come and steal my child.
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Another thing that is bad, is having a (ex)spouse who treats us like a leper or something not worth helping. I had a seizure in bed one morning. I had already told my (ex)wife what to expect and do if I had seizure. All she did was sit and stare. She didn't help me at all!!!!!
A year after she left me, she told me that she had wished my disabilities would "just go away". It was then, that I decided to divorce her instead of trying to reconcile.
On top of that, four years after I divorced her, she finally admitted she was disabled, which I had known for more than ten years. When I had tried to get a psychological evaluation done on her prior to the separation, she refused. Not to see if she was crazy or anything like that. But to get a further understanding of why she behaved the way she did. When I divorced her, my parents, step-mother, her mother and maternal grandparents were there. Right after it was finalized, my (ex)wife started running around to every family member present, individually, crying like a baby. It was behavior like that, that I had to deal with for four years(before the separation). She was in denial about my health problems, and her own!!!!