Just a question - what dosage (if any) of steroid/immunosuppresant are you on? I am becoming more and more convinced that a weakened immune system causes severe pain (and obesity, and diabetes, and.... the list is endless)

Unfortunately, we have to be on IS's to manage the MG.

I'm one of those folks who always tested negative for diabetes; a month after starting prednisone, my blood sugar had jumped into the pre-diabetic level - you can't tell me that was a "coincidence"....

Are you currently taking potassium supplements? I found that when I started on that, muscle cramps would wake me up with excruciating pain in the middle of the night. When I stopped the potassium, the cramps went away.

My family doctor put me on potassium when my levels dropped not long after she changed my blood pressure medication - low potassium is a known side effect of that particular BPM. If my potassium levels come back low this time, she's going to change it to something else, because I have let her know that I will not be taking any more potassium supplements - the pain isn't worth it.

I initially took one pill in the morning (10 mg) - noticed cramping, but I didn't make the connection. After my bloodwork showed my potassium levels were still low, my doctor increased it to a pill in the morning and one at night - when the cramping started at night, I basically told her I was going off of the nighttime dosage as an experiment; the nighttime pain stopped immediately. But I was more attuned to the fact that I had experienced cramping with the potassium, so I had an explanation for the bad cramps I was getting during the daytime as well (realized I had not experienced them before starting supplementation). So I took myself off of them completely, and have not had any cramping since then (I'm driving my internist crazy..... ).

For most people, too LITTLE potassium will cause those cramps, so we're stumped as to why I'm cramping with supplementation; there may be something else in the pills (potassium chloride) that is causing the cramping, but I haven't found that I experience any cramping whatsoever with a lower level of potassium in my system.

It may be that there is some as-yet-unknown adverse interaction between the medications that we take for MG and potassium supplementation - heck, I'm always open to new/unexplored possibilities; since MG is so rare, it's more than likely that MANY drug interactions haven't been studied.

(It would be interesting to see if people who are on steroids experience these cramps if/when they are put on potassium supplementation)

That's just my experience, FWIW (and I could also see the muscles visibly cramping up while I was on the potassium).

Are you on a gluten-free diet? You might find some measure of relief with that, as well....
(You may find that it helps your bones as well - osteoporosis is something that is seen in people who are gluten-sensitive; I think it all goes back to a depressed immune system also, and steroids don't help that one little bit )