Welcome RavenRed!! Absolutely loved your descriptions...we MG'ers could 'tell' you had MG even without the tensilon test!! But as all have said, you are extremely fortunate to have found a wise, responsive neurologist. And, who knows, you may be his first MG dx!

Do be sure you get your thymus scan results for your neuro. You may have to sign permission to transfer from your vascular doc - - or just pick up the report yourself and bring it with you to neuro. This will keep you from having to have another CT (always wise to limit these as much as possible) since neuro will definitely want to check out your thymus and have a chat with you about that. If he or any other doc needs to actually see the CT film results, you can sign permissions for that also.

There are a few places on the web that you can go to get more info on MG.
- cleveland clinic, mayo clinic, and many other sites have the standard info/frequently asked ??
- the national MDA site has some good info too - and has a pretty good list of drugs, etc. that are to be avoided by MG'ers - - - as well as things that can accelerate our weakness (like temperature extremes, exercise, stress, etc.)

- and finally, if you really want to get into the biochemistry of it all, do a web search on NMJ and MG....all sorts of bedtime reading will pop up!

In answer to did you do anything to cause MG...no, you didn't. There is a problem in the neuro-muscular junctions of your body. (see 3rd item above - - lots of info on this NMJ stuff on the web)

What comes next? Maybe more blood work. Perhaps a consultation on your 'lumpy' thymus with a surgeon. And for sure, discussions about course of action and medications. No cure...but there are drugs out there that are used to try for remisssion.

I would recommend that you begin your own medical file. Get copies of any / every test result, doctor's notes from every visit, and journal your own responses to meds, etc. (esp in the beginning). It is amazing how much of an advocate you will need to become for yourself. It is far easier if you gather your ammunition along the way !!

Glad you found this site - wide range of info directly from folks who have gone through things themselves. Please let us know how your doc appointments go and always, always feel free to ask any question.