Thank you all!

You were all right!; Neuro sat me down, said yep, losing the voice is part of this ... talked to me about Mestinon and wrote a script - he wants to start out "gently" considering I had such a good reaction to the tensilon - 60mg 6 hrs apart. He also told me I'm his first Mger so we gonna have to take it step by step and learn together and to make sure I talk to him - even if it doesn't seem "that important".... as to "lumpy" he says lets see 1) how I do on the meds 2) if it gets bigger (i.e. another scan after meds for awhile)


I have to admit I'm abit scared (okay terrified as everything seems to be going downhill so quickly) but seeing that others are getting thru it has helped - I look forward to talking to all