Good questions! And you are so right; we need more participants. How is Fox Finder going? If people would just realize that they may be among the first to experience the success of a new treatment. That almost overshadows the bad stats.

you asked:
How did Emory get your name in the first place? I saw an MDS there.

Had you indicated an interest to your doctor in clinical trials? yes
In fact the DBS had just been approved for globus pallidus (?sp) placement, andI was on the waiting list for STN placement (subthalmic Nucleus) There was a waiting list for the DBS a mile long! If people see and hear "it works," everybody wants to sign up. Then I got the call about the Spheramine (retinal cell) transplant.

Had you been diagnosed or treated at Emory? Yes I went each year and saw (still see) a local neurologist for meds, Rx refills, etc. In fact my local neurologist is who referred me to Emory originally. He's a saint. There are a few good ones around.